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Aurora Horstkamp posted an update 3 months ago
Letter from the Advisory Committee to the acting CDC director Monarez requesting more information regarding the removal of specific datasets from the CDC website (Atlas of HIV, hepatitis, TB, social determinants of Health data, Social Vulnerability Index, Environmental Justice Index, Youth Risk Factor Behavioral Surveillance System,… Read more
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I added the letter to the website.
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lfralston posted an update 3 months ago
My apologies for my earlier post about the “50501” call for protest. I’m hearing from various local activist groups that this is extremely fishy and should not be considered safe or legitimate. Mea culpa, and next time I will do my due diligence first before putting people at risk!
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Looks like this event actually happened and got some news coverage, even a Wikipedia page.
https://www.nytimes.com/2025/02/05/us/politics/trump-protests-50501-project-2025.html
Saw some articles on Newsweek, abc news, USA Today also.
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BobMorris posted an update 3 months ago
Here is what I have so far on data preservation LMK if I missed anything. https://sciencecollaborative.org/public-health-data-archives/
sciencecollaborative.org
Data Preservation – The Science Collaborative
Data Preservation – The Science Collaborative
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I apologize for an error as I had mistaken the Covid Tracking project was one site that archived recent datasets, but it is no longer collecting data. The Covid Tracking project has data saved up to March 2021 though. I misinterpreted an email from the infectious disease committee bc it was written by someone who had worked on the Covid…
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lfralston posted an update 3 months ago
New Harvard Library data preservation initiative: https://lil.law.harvard.edu/blog/2025/01/30/preserving-public-u-s-federal-data/
lil.law.harvard.edu
Preserving Public U.S. Federal Data | Library Innovation Lab
Preserving Public U.S. Federal Data | Library Innovation Lab
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Thanks to you and Aurora for the links. I have added a page to the site. https://sciencecollaborative.org/public-health-data-archives/
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Aurora Horstkamp posted an update 3 months ago
Somebody is keeping a list of what sites and data are being archived https://docs.google.com/forms/d/e/1FAIpQLScdi6gcBKKqoK3iV4uHsGFnaSlgT2vAfHaCr_6SdNZJkYWRhQ/viewform
docs.google.com
Downloaded CDC Data And Where To Find It
Journalists and scientists are downloading a bunch of public health data they suspect might be at risk of deletion. Instead of all of us privately reinventing the wheel over and over, what if we share who has what and where … Continue reading
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Aurora Horstkamp posted an update 4 months ago
Another site for archived material
github.com
GitHub - end-of-term/eot2024: End of Term Web Archive 2024
End of Term Web Archive 2024. Contribute to end-of-term/eot2024 development by creating an account on GitHub.
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Aurora Horstkamp posted an update 4 months ago
As shared by a member on the DPH Infectious Disease Committee, multiple full archives on COVID were completed today! Yay!
covidtracking.com
The COVID Tracking Project collects and publishes the most complete testing data available for US states and territories.
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Aurora Horstkamp posted an update 4 months ago
Found an article on the Harvard datathon that actually has more info about archiving websites on your own through other sites such as the Wayback machine. I have tried other sites but the issue is many will only save a screenshot of a landing page but not the dataset. Check out the resources suggested in the…
journalistsresource.org
Researchers rush to preserve federal health databases before they disappear from government websites
Journalists have long relied on federal health data for their reporting. We include several tips that they can use to help researchers preserve the data.
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Does this have additional links?
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Aurora Horstkamp posted an update 4 months ago
The Infectious Disease Committee had its first meeting yesterday and set up a Google Groups. Today they are also talking about archiving CDC/NIH websites. I learned that Harvard set up a datathon, a data preservation event today which I missed. Not sure if there will be future meetings, but if it went well, I assume it will be a…
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This is excellent. We should start a list of groups seeking to protect public health through advocacy, data preservation, misinformation response, etc.
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lfralston posted an update 4 months ago
Per NPR, the CDC has removed a ton of info from its website, including info on HIV, the Social Vulnerability Index, and the Youth Risk Behavior Surveillance System. https://www.npr.org/sections/shots-health-news/2025/01/31/nx-s1-5282274/trump-administration-purges-health-websites
npr.org
Trump administration purges websites across federal health agencies
Research and basic information on subjects ranging from tuberculosis surveillance to adolescent health disappeared from federal health agency websites.
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They also took down the Household Pulse Survey which houses the Long Covid data. 😡
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